Let’s be clear: Adderall works very well for some people with ADHD. For others, it can create more problems than it solves—exacerbating anxiety, irritability, and even rage. That’s why years ago I started calling it “Madderall.”
How many physicians know this? Don’t get me started on the sorry state of ADHD treatment. I encounter the casualties daily—and have for almost 20 years.
To further complicate matters: Adderall is also a popular drug of abuse. Yet, the story of “Adderall Abuse” is complicated.
If you found this post after searching the Internet for “scoring” and abusing Adderall, I hope you will read on. You won’t find what you’re looking for but you might find something better. The fact is, chances are good that you actually have ADHD and attempting to “self-medicate” it.
My main message here is two-fold:
- To explain the very good reasons to consider Adderall not a first try but rather a last-stop in stimulant medications.
- To warn that many if not most prescribers are incompetently treating ADHD.
- To emphasize self-education and self0-advocacy—for yourself or on behalf of your loved ones.
More ClickBait From The New York Times?
Yesterday, given a back-channel tip, I steeled myself for the next anti-ADHD screed from the The New York Times. What did I expect? If it followed the long pattern, it would be a stigma-producing attack on the diagnosis itself, not to mention the medications so often successful in treating it. Reporters seem to think this is an original angle. We who are knowledgeable about see it as traffic-boosting clickbait.
It was only when I became an expert on ADHD that I realized that The New York Times is incredibly anti-science and pro-stigma when it comes to psychiatric conditions. Over the years, I’ve written several posts:
Grief —that yet another person fell victim to the stimulant Adderall, a medication that, even though helpful for many people, can create severe reactions in many others.
Relief—that finally The New York Times’ anti-psychiatry wingnuttery finally got something right about ADHD. At least in tiny part.
And the tiny part is this: The manner in which many prescribers treat ADHD largely resembles a giant game of “Pin the Rx on the ADDer.” Or even worse — a “test the spaghetti” equivalent of throwing chemicals at someone’s brain and seeing what sticks.
Look For My Book’s Excerpt Below
At the end of this post, you’ll find an excerpt from my first book‘s chapter on medication. I wrote it so patients can be smarter mental health care consumers when it comes to ADHD. So they can avoid negative and even tragic outcomes.
The book also contains also a sidebar on the important distinctions between the two classes of stimulants: 1) methylphenidate, or MPH and 2) amphetamine, or AMP.
It’s hard to imagine, but I was the first person to write about that in a consumer book on ADHD.
Now, back to the story.
Core Problem: Poor Prescribing
For 16 years, I’ve collected first-person stories. Story after story repeated in my Adult ADHD support groups had me very concerned about reckless prescribing patterns around Adderall.
It’s hard to explain why, even today, so many prescribing physicians consider Adderall the “most effective” medication for ADHD. Where did they get that? Pharma reps with cleavage?
But to understand the more essential problem, we have to start with poor prescribing protocols overall.
Prescribing physicians should use rating scales with the patient. They should be using a checklist of symptoms that helps them monitor how well the medication is working—and what side effects it might be creating.
Physicians should also gather reports from family or close friends. That’s because sometimes folks with ADHD lack accurate self-observation. Typically, this improves with medication, but the wrong medication can further cloud self-observation.
Shockingly, too many (most?) physicians most don’t bother with either method. They rely on a casual, “So, how are you doing?”
So, to be clear, the prescribing of any stimulant is typically done badly. Moreover, little attention is paid to rebound or co-existing conditions such as anxiety or depression.
In fact, I credit generally slipshod prescribing patterns and this over-proliferation of Adderall for much of the blowback against ADHD and the medications used to treat it.
The sadly frustrating part is, I predicted this blowback years ago and tried to prevent it.
Yes, Adderall Works For Some People
Make no mistake: For some people, Adderall works well and with few side effects. It is the best choice for them.
Yet, Adderall has a higher side-effect profile. So, I encourage individuals with ADHD just beginning treatment to first consider a conservative route: That is, try Adderall only after trying the methylphenidate class stimulants (Ritalin, Focalin, Concerta, Daytrana, etc.) and some newer delivery systems in the amphetamine class (such as Vyvanse).
Ideally, a trial should be given of both the amphetamine and methylphenidate classes, as I explain in my book. That way, you can judge which works best. There is no way to predict beforehand how a person will respond to either class of stimulant. It all depends on their unique neurochemistry.
Yet, so many physicians routinely start new patients with Adderall, and at too high a dose.
It makes no sense! Adderall is an old and outdated option, given the superior delivery systems available today. These systems release the medication more evenly and over a longer period of time, creating less of a “rollercoaster” for neurotransmitters.
Still, the ignorance around Adderall is only one piece of a very problematic and often tragic puzzle:
Physicians who see ADHD as a “simple condition.”
“You just throw a stimulant at it!,” one psychiatrist told me. He was explaining why he didn’t find ADHD treatment interesting and therefore not worth his study.
In fact, ADHD is a highly complex condition, especially when it is diagnosed later in life. A thorough history must be taken, including teasing out signs of the co-existing conditions suffered by an estimated 75 percent of late-diagnosis adults with ADHD. Moreover, 50 percent of these adults will have two co-existing conditions.
Medication must be started at a low dose. Always. No exceptions. No. Not ever.
“There is no starting or average dose!” I’ve lectured for years. Yet still, that seems the status quo.
Symptom targets must be identified and tracked. Yet, what is the percentage of cases in which this kind of care is actually shown? From my long and close observation, I’d wager about ten percent. At best. That’s not a scientific opinion but one I stand by, as reflecting at least a significant sub-section of the ADHD population.
Yes, insurance companies share the blame; they do not reimburse psychiatric treatment at a rate commensurate with the kind of expertise and time required. But physicians are responsible for understanding on a basic level the medications they prescribe.
People with ADHD impatient for results—would rather “feel” it than observe it objectively
If I had a dollar for each time I’ve warned about this dangerous trap.
The hard truth is, you can’t depend on a “visceral feeling” to tell you when the medication is working. In fact, sometimes you won’t realize that the medication is working, but the people around you will!
Moreover, relying on that feeling (especially if it feels like booster rockets have been attached to your butt) almost guarantees a bad end. Maybe not today. Maybe not tomorrow. But soon. And you might be so strung out you don’t even know it.
Often, patients (or their parents or partners) will listen to me only after the fact—after the typical crash that happens. For many people, that’s about two months into Adderall usage.
When they are completely depleted. Typically from exhaustion (why go to sleep when for the first time in your life you have “superhuman” focus?). But due to Adderall’s mechanism of action, their very supply of neurotransmitters might be depleted.
Parents’ and loved ones’ denial systems about ADHD
Now we turn back to the NYT story. Did the poor young man featured in the piece truly not have ADHD, as his parents claim? I’ve seen no evidence of that.
This was the weakest point of the story, I think. Alan Schwarz, the reporter, did not dig deeply enough. He has made it clear that he has no understanding of ADHD’s complexity. As a former newspaper editor, I have seen the pattern: “Hot Dog” reporters who will do anything to land on the front page, above the fold. It is my perception that Schwarz was campaigning for a Pulitzer—on the backs of people with ADHD. Fortunately, the Pulitzer Prize committee did not go along.
Schwarz absolutely fails to comprehend that ADHD sometimes had a way of “sneaking up” on people later in life. That’s when their innate intelligence and ability to get by in school without good study habits are no longer enough to let them keep up with their goals. So he misses the cues that these people are “abusing” stimulants when really they are seeking help.
I feel deeply for Richard Fee’s parents. It sounds like they tried. They really tried to warn the physicians of what was happening to their son. I’ve seen the same thing for years. The partners of adults with ADHD try desperately to get through to the Adderall-prescribing physicians that their partners are turning into rage-aholics.
But could it be the parents’ own denial systems about their son’s long-running ADHD-related problems augmented their son’s distress? At least these doctors believed him, Richard Fee might have felt.
Did he have a condition such as bipolar disorder (either instead of ADHD or co-existing to it) that made him more likely to abuse or become addicted to Adderall? Was he using Adderall to minimize sleep so he could study more, thus becoming sleep deprived and further deteriorating his mental function?
We’ll never know.
Rest in peace, Richard.
Excerpt: My Book’s Chapter on Medication
Now I’ll share with you now the introduction to my book’s chapter on medication. Please share it with anyone who is thinking of seeking treatment for ADHD. You cannot rely on the average physician or even psychiatrist to be competent.
I do not want to scare people away from seeking the treatment that can vastly elevate their lives. But I do want to emphasize: We consumers must be educated, we must self-advocate.
To lack vigilance is to risk a lot. Trust me on this. Please don’t let you or your loved one be another casualty. The method of identifying ADHD symptoms and medically addressing them is, for the most part, not rocket science. It’s not even brain science. It’s step-by-step logic and observation.
It took Alex two grueling years to convince his wife to seek an evaluation and then treatment for her diagnosis of ADHD. “Now, who knows how long it will take me to convince her to ditch this psychiatrist, who refuses for no logical reason to prescribe stimulants and find one who actually understands ADHD,” he complains. “My wife is skeptical that I or this support group could know something her psychiatrist doesn’t. But trust me, it’s alarming how little this guy knows.” Looking back, Alex wishes they’d been far more careful in selecting a physician.
In Jeanette’s case, the irony is that she never found her husband’s ADHD a problem—until after he started medical treatment for it. “I used to go to bed at night thinking I’m the luckiest wife in the world,” she recalls. “Yes, Mike is lousy at paperwork and he doesn’t remember to take out the garbage (or what day it’s collected!), but he is fun, very goodhearted, and rarely gets angry, and loves being with me and the children.” All that changed soon after Mike learned that he might have ADHD and decided to do something about it. He had recognized in himself the traits he didn’t like in his father, including poor follow-through on promises, and wanted to do a better job with his own family. “His attitude was, ‘If treatment can help me to be a better person, why not?” Jeanette recalls.
Unfortunately, under the first physician’s care, Mike’s personality changed completely after starting medication. “Medication seemed to be a miracle worker at first, but then it ended up making him angry all the time,” Jeanette explains. “I went from this perfect marriage to hating my life and being ready to leave him. The worst part was that he didn’t realize that things were getting worse, especially the anger, until we were in major trouble. As far as he was concerned, his focus was better so that was great. But in reality, his focus was unrelenting.”
Jeanette found the support group’s feedback critical to realizing what was happening. He was probably either on the wrong type of stimulant medication or at too high a dosage. She also learned how to find a more qualified physician and, more important, convince Frank that he was turning into a father far worse than his own.
Stories like this are way too common for the support group’s comfort. As much as we might want to place our faith in our physician’s ability to navigate the increasingly complex world of medicine for us, one troubling fact remains: Many physicians, including psychiatrists, are poorly trained to treat Adult ADHD. Some know that and respect their limitations, but some don’t. As long as you understand this going in, and as long as you take steps to be a smart healthcare consumer, the chances are good that you will avoid common pitfalls and come out a success story.
“My message to those embarking on this journey,” Jeanette says, “is don’t be afraid of medication; it can bring great changes. Just be aware.”
Indeed, lest you be scared off entirely from pursuing medication treatment, know that, for many, it is a straightforward issue. In fact, ADHD Partner Survey respondents report that when their partner started taking medication, symptoms improved significantly within:
• Hours (15 percent)
• Days (39 percent)
• Weeks (19 percent)
As Jeanette learned, however, the initial “promise” of medications to smooth out the ADHD roller coaster can soon peter out. Support-group members have agonized over this phenomenon for years. Now, the medical community seems to be catching on. “The diagnosis and medical management of ADHD is only the beginning of a course of treatment that should last a lifetime but rarely does,” declared psychiatrist William Dodson in a 2006 article for Medscape.
This chapter will support you and your ADHD partner in creating your own success story by helping you to:
• Avoid common pitfalls that lead to low treatment adherence.
• Understand that treatment education and goal setting form the foundation of successful medication treatment.
• Know that each person has a unique biochemistry, which eliminates the possibility of any single medication or standard dose being the
best choice for everyone.
• Recognize that it requires a careful, methodical process to find the best fit in a medication regimen.
• Know that ADHD commonly coexists with other conditions, which must be considered in any treatment plan.
The good news is that physicians are increasingly becoming more educated, and these guidelines should help you shop for and recognize competent care when you encounter it.
For more posts related to ADHD medications, click here: archives
For more information on my book, click here: Is It You, Me, or Adult A.D.D.?
COPYRIGHT 1201 ALARM PRESS, 2008
—I welcome your comments.