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Adult ADHD

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Yesterday, given a back-channel tip, I steeled myself for the next anti-ADHD screed from the The New York Times, fully expecting yet another stigma-producing attack on the diagnosis itself and the medications so often successful in treating it. Yet, last night, when I read online the story by reporter Alan Schwarz (“Drowned in a Sea of Prescriptions”), my reaction was both grief and relief.

Grief that yet another person fell victim to a medication that, even though helpful for many people, can create severe reactions in many others. Relief that finally The New York Times got it right: The manner in which medications for ADHD are prescribed in this country largely resembles a giant game of “Pin the Rx on the ADDer” or even worse — a “test the spaghetti” equivalent of throwing chemicals at someone’s brain and seeing what sticks. (Below, I offer an excerpt from my book‘s chapter on medication, written precisely to help people avoid such tragic and unnecessary outcomes; there is also a sidebar on the important distinctions between the two classes of stimulants: methylphenidate, or MPH, and amphetamine, or AMP).

Yes, I am angry, and I’ve been angry for a long time about the medication I’ve come to call “Madderall.” For 15 years, I’ve collected first-person stories about the potential dangers of Adderall, including the fallout from prescribing physicians who view it as the “go to” medication for people with ADHD without knowing to be watchful for its potential side effects. If they did as they should do and gathered reports from family or close friends as to how the medication seemed to be affecting the person, they might know about these side effects. But most don’t bother or even deem it important.

Because Adderall so often can cause problems, I encourage people to consider it only after trying the methylphenidate class stimulants (Ritalin, Focalin, Concerta, Daytrana, etc.) and some newer delivery systems in the amphetamine class (such as Vyvanse). (Ideally, a trial should be given of both the amphetamine and methylphenidate classes, to see which works best. Sometimes even a combination of the two proves optimal.) Yet, so many physicians prefer starting new patients with Adderall, even though it is mostly an old and outdated option, given superior delivery systems available today that release the medication more evenly, creating less of a “rollercoaster” for neurotransmitters. Still, the ignorance around Adderall is only one piece in a very problematic and often tragic puzzle: Read the rest of this entry »

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Oh yes it’s garbage night
And the feeling’s right
Oh yes it’s garbage night
Oh what a night (oh what a night)

People who know my husband only as a serious-minded scientist could hardly imagine, come Tuesday trash-taking-out night, his jaunty rendition of Kool & the Gang’s Ladies Night.

Ten years ago, neither my husband nor I could have imagined it, either. He’s actually happy to be taking out the garbage and recycling instead of working himself up into a Klingon-warrior-inspired snit about it? Yes, it’s true. Just one of the miracles of medication. And a few attitudinal adjustments.

I was reminded of that remarkable transformation today. In talking with some adults who have ADHD, I mentioned the importance of establishing treatment targets before starting to take medication; otherwise, how will you know if it’s working? Meg agreed: “The first big clue I had that my meds were working was when, instead of thinking about how much I hated taking out the trash and recycling, I just took out the trash and recycling.”  A woman after my husband’s heart! Read the rest of this entry »

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A quick note to let you know that my book, Is It You, Me, or Adult A.D.D.?, is available as a download from Amazon.com for Kindle devices and Kindle applications for iPads, iPhones, PCs, and so forth.  Just click on the book title above to go directly to the product page.

Please tell your friends in Germany, France, Spain, Italy, and the United Kingdom that the Kindle is available on Amazon.com in those countries. (This is the English version.)

Thank you for spreading the word.

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If you live within broadcast range of Atlanta’s public TV station WPBA, be sure to catch an airing of  ADD & Loving It?! (View film trailer below.) Better yet, let this PBS station and others know that you support such programming by pledging during the airing.

This funny-factual documentary about ADHD will first air on WPBA  (PBA 30) Sunday, August 8th, at 1:00 PM and August 9th at 3:30 AM. (It will repeat later in the month, so check the schedule.)

Please share news of this with your friends in the Atlanta area. (And, it’s a perfect “primer” on ADHD for the CHADD’s 22th International Conference, held in Atlanta this November.) You can forward this page as an e-mail or use the “share” link below to post to your Facebook page, Twitter, etc. Word is spreading…one PBS station at a time!

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Do you have your grade-school report cards handy?  These artifacts can be useful when it comes to being evaluated for Adult ADHD because the diagnosis requires evidence of symptoms in childhood. Case in point: the childhood reports (below)  for San Diego-based psychotherapist and ADHD specialist Lew Mills, who has graciously agreed to share them here.

Such records aren’t mandatory, however, so when I hear from readers whose physicians demand such, I suspect these clinicians simply don’t want to (or don’t know how to) conduct a proper evaluation. In other words, it might be a stalling tactic. A wearing-you-down obstacle to diagnosis. Read the rest of this entry »

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umbrellawedI knew something was up when a greater-than-usual  number of “help, please!” e-mails appeared in my in-box this morning.

Then my friend Doreen gave me the heads up on Facebook: MSN.com had featured a “When Your Lover Has ADHD” tag on its Valentine’s-themed homepage.  It linked to an interview I’d done last year with Health.com: “When Someone You Love Has ADHD: Frequently Asked Questions About Helping Your Partner and Yourself.”  It begins this way:

When journalist Gina Pera married a man with undiagnosed Attention-Deficit/Hyperactivity Disorder (AD/HD) she embarked on a wild ride that took her from frustration and confusion to understanding and advocacy. Today she runs support groups for people with ADHD and their partners, and her book Is It You, Me, or Adult A.D.D.? was published in 2008.

“Wild ride” indeed. But our marriage started out more on the rainy side. (That’s us at our outdoor wedding in 1998.  Despite the huge two-person umbrella, my husband still managed to position the dripline right over me. Fortunately, that kind of center-of-the-universe tendency is a relic of the past — or neither one of us, not to mention our marriage, would have survived!) Here’s a sample of the questions:

Q: How did you realize that your husband had ADHD?

Q: In the title of your book, you used the outdated term “ADD.” Why that instead of ADHD? Read the rest of this entry »

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Thanks to Philadelphia ABC affiliate WPVI-TV for airing this well-balanced segment during ADHD Awareness Week, and thanks to Dancing with the Stars star Karina Smirnoff and the amazing Kavanaugh family for sharing their stories. (Oh, I make a small cameo appearance, drawn from a 30-minute interview with Health producer Dawn Heefner. Astute, intelligent questions all!)

PHILADELPHIA, PA.; September 22, 2009 (WPVI) — Attention deficit disorders are common among children. But few people know that they affect anywhere from 4 to 16% of American adults too – though most don’t know it. But identifying the disorder can be a big step in learning how to live a good life with AD/HD.

Karina Smirnoff moves across the dance floor in “Dancing With the Stars” with a precision that shows hours & hours of practice.

That’s not easy for someone with attention deficit disorder – ADD….

Continue reading at KPVI’s website, and PLEASE leave a note of appreciation there for this story.

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Maybe we so often associate ADHD challenges with schoolwork, paperwork, and housework that we don’t often think of ADHD putting a kink in, um, bedroom fun. Or, that activity that we assume most people can do “in their sleep”: sleep.

Ah, but what you don’t know can hurt you. It can hurt your love life. And it can hurt your ability to get to bed on time, go to sleep, and stay asleep, not to mention leaving you prone to gasping for air (sleep apnea) or dancing the cucharacha with your restless legs all night.

I invite you to visit my blog on ADHD and Relationships to learn a bit more on those two subjects and, best of all, read the many insightful comments from readers that follow. (While you’re there, please sign up to follow this monthly blog so you’ll be notified of new posts.) I guarantee you’ll find some kindred spirits.

1. ADHD and Sex: No Shame, No Blame

“Gina, sex is difficult for people with ADHD; it’s tough to stay focused!” says a female Facebook friend, responding to my query on this topic. Read the rest of this entry »

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New study on ADHD and adults
New study on ADHD and adults

To watch a short interview on NBC’s The Today Show with preeminent ADHD research scientist Dr. Russell Barkley, click on the link above. He introduces the studies examining long-term outcomes of children diagnosed with ADHD. For details on this groundbreaking research by Dr. Barkley and colleague Dr. Mariellen Fischer, read ADHD in Adults: What the Science Says. (Click on the title to learn more about it on Amazon.com.)

TO LEAVE A COMMENT, PLEASE SCROLL DOWN. NO REGISTRATION REQUIRED!

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Read through a few online archives where adults with ADHD share their thoughts, and invariably, you will encounter just a few like this:

“Those of us who do take meds take them so we can function in a non-AD/HD world.”

They would operate just fine in the world, they maintain, if it weren’t for all the “neurotypical” types making them toe the line. Betsy Davenport, a Portland clinician who specializes in treating AD/HD (and has it herself), responded to one such post this way:

“Actually, I take medication to maximize my functioning in THE REAL world, which includes my home, where we ALL have Quirky Brains. It has nothing to do with the rest of the people, or the conventional expectations of the rest of the world’s people, or the rigid social climate in which we live, or any of that rot. Read the rest of this entry »

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