ADHD in the News

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umbrellawedI knew something was up when a greater-than-usual  number of “help, please!” e-mails appeared in my in-box this morning.

Then my friend Doreen gave me the heads up on Facebook: MSN.com had featured a “When Your Lover Has ADHD” tag on its Valentine’s-themed homepage.  It linked to an interview I’d done last year with Health.com: “When Someone You Love Has ADHD: Frequently Asked Questions About Helping Your Partner and Yourself.”  It begins this way:

When journalist Gina Pera married a man with undiagnosed Attention-Deficit/Hyperactivity Disorder (AD/HD) she embarked on a wild ride that took her from frustration and confusion to understanding and advocacy. Today she runs support groups for people with ADHD and their partners, and her book Is It You, Me, or Adult A.D.D.? was published in 2008.

“Wild ride” indeed. But our marriage started out more on the rainy side. (That’s us at our outdoor wedding in 1998.  Despite the huge two-person umbrella, my husband still managed to position the dripline right over me. Fortunately, that kind of center-of-the-universe tendency is a relic of the past — or neither one of us, not to mention our marriage, would have survived!) Here’s a sample of the questions:

Q: How did you realize that your husband had ADHD?

Q: In the title of your book, you used the outdated term “ADD.” Why that instead of ADHD?

Q: What are the biggest issues that get in the way when one partner in a relationship has ADHD, based on your experience with support groups?

Q: Besides problems at work, how else can ADHD affect a family’s financial situation?

Read more questions (and answers)  here.

Here are two of the e-mails I received this morning. Identifying details have been changed, but the challenges and sentiments expressed are common to the communications I’ve received for ten years now:

From Helena in Georgia:

Dear Gina,

I just read an article on MSN.com on the above.  It may be me.  The MSN article caught my attention because it noted that your husband is a scientist, which is not the sort of occupation I would expect a person with this problem to have.  I’ve always had difficulty with organization and time management as well as priorities, however, I am considered reasonably accomplished by most standards.

It takes a great amount of energy, though, for me to stay focused sometimes and I often run late and do miss deadlines, one of which nearly cost me my job.  When I am focused I am far more productive than the average person, which is fortunate because when I’m not I spend hours getting nothing done.

I rarely check out a book or rent a movie that doesn’t go back late – even when I tell myself I won’t forget I always do.  My two older kids (10 and 14) find it amusing.  I’ve made great improvements on my own with my time and procrastination in the last couple of years, but still struggle to do better and to understand why it is an effort for me but apparently so easy for others. Mostly I’ve substantially reduced the things that are regularly on my “to do” list which has really helped. I have a history of taking on more than anyone could possibly do in a 24 hr day even without sleep – partly because, strangely, part of me enjoyed having to rush to get things done even though it is so stressful.  I realize that this is actually a problem. As I’ve done less I’ve found that getting things done ahead of deadline, or even being early for appointments (wow), feels so much better.  A no brainer for most I’m sure but it wasn’t for me.

I never would have thought of ADD as an issue because I always understood that to mean a person who can’t focus on any task and who generally doesn’t do well in life as a result.  My sister is like that and is normally unemployed.  On the other hand, I worked my way through college and law school, which took great effort.  My ex once suggested I might have attention deficit which I rejected noting that I couldn’t possibly have become an attorney if I did.  After reading your article I see that he might have hit the nail on the head.

If I could relieve the stress of wondering when I’m going to drop the ball again, and worrying if it will be one that sinks me professionally or personally, life would be so much better for me and my kids.  One of my fears is that my children will have the same problems I do.  I am going to look into this as a possibility  in my life and hopefully  will find answers and solutions that I so badly need.

Thank you for shedding new light on this issue.

From Russ in Iowa:

Hi Gina.

Wow, I just read your article regarding adult ADHD.  I stumbled on it actually, but  it immediately caught my eye since I have been married to a woman for over  20 years with (at least I am fairly certain) with Adult ADHD.

It has become much worse and has really taxed our marriage over the past few years.  She is a great person, but just can not get her act together on so many fronts – organizing and teaching kids about daily routines and chores,  social plans for us with friends,  and on and on.  The kids (we have a son, 9, and a girl, 13) are becoming more frustrated too as it is affecting them more as they get older.  For example, if my wife says, “I will be there in a minute to help you” – she often gets back to them, if at all, hours later and after repeated requests.  If she tells us to wait before starting dinner, she may not show up for 30 minutes, or longer if not constantly prodded.  She gets lost in so many insignificant things on her way to doing what she is supposed to be at any given moment. But she seems to not realize that she’s doing it — or why we’re upset.

She is constantly getting times, dates and names wrong even when we have what I perceive as clear conversations with her.  She often doesn’t remember entire conversations or issues we discussed and is adamant it did not occur.  It drives me nuts.

She is always scrambling at the last minute to plan birthday parties and other types of activities.  She often goes out for a simple errand (to pick up something at the store) and doesn’t come back for hours. I don’t know whether she’s taken ill or gotten in a car accident!  And this happens when we have definite plans later in the day, for which she is then of course late. When she comes back, she has bags of items she really doesn’t need.

She does not work outside the home, and we have a nanny and maid. Still, she is scrambling to get the kids out the door in the morning because nothing was organized the night before, and she usually sleeps through the alarm – they’re always stressed and arguing because of it.

I love her and want to stay married to her. But this is not the kind of life I want for myself or my family. Our social life has suffered because she doesn’t understand the reciprocal behavior that creates friendships and social circles.

We’ve seen couples therapists, but it has been less than helpful. We really need some help since things are getting worse in a hurry.

Your article was so on point, and I will read your book.  Please give me any advice you can.  Thanks.

Pressured by Congress to crack down  on performance-enhancing drugs and “false claims of A.D.D.,”  Major League Baseball is pleased to report that the number of exemptions for ADHD medications are tapering off.  Is this really news worth celebrating?  I’m not so sure.baseball

In 2007, the number of players receiving exemptions for ADHD rose to 108, from 28 in 2006.  That figure strikes me as reasonable, not alarming, given increasing public awareness during that time period.

After all, the players receiving exemptions represent about 9 percent of total players, which number  1,200 or so.  Extremely conservative estimates place the percentage of adults with ADHD in the general population at about 4 percent, but experts acknowledge that using more realistic criteria bumps the figure as high as 16 percent.

Yet, as reported in a previous post (“Anti-Doper Doc Dopey about ADHD?”), this spike created quite the rhubarb among sports officials, including non-savvy ADHD physicians. (“This is incredible. This is quite spectacular. There seems to be an epidemic of ADD in major league baseball,” said Dr. Gary Wadler, chairman of the committee that determines the banned-substances list for the World Anti-Doping Agency.)

This recent article in The New York Times article (”Number of M.L.B. Players Given Drug Exemptions Up Slightly“) explains the latest report on all medication exemptions.

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This week: A guest post from ADHD coach Cynthia Hammer, founder and former executive director of Seattle-based non-Cynthia Hammerprofit ADD Resources (click here to visit her blog, “Pinnacle Coaching”).

I’ve always enjoyed Cynthia’s personal essays (look for more to come), and we both appreciate the thoughtful perspectives of Judith Warner, who writes the “Domestic Disturbances” column for The New York Times.
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Do you ever get discouraged about all the bad and inaccurate press about ADHD? That it is a condition that doesn’t exist? That those of us who have ADHD are seeking the easy way out by taking medicine or that we parents give dangerous medicine to children for a made-up condition?

I just finished reading an article by Judith Warner, a columnist for The New York Times who planned to write a book on these kinds of topics, but she kept putting off writing the book—and she finally realized why. Read the rest of this entry »

Since I posted this blog entry on recent research from neuroscientist Nora Volkow and colleagues, more detailed stories interpreting the study’s findings have become available. In particular, this report from MedPage today targets clinicians. That site also includes an audio interview with Dr. Volkow, below (despite a strong Spanish accent, Dr. Volkow does a good job of making complex concepts understandable to the layperson, in my opinion).

Thanks to Philadelphia ABC affiliate WPVI-TV for airing this well-balanced segment during ADHD Awareness Week, and thanks to Dancing with the Stars star Karina Smirnoff and the amazing Kavanaugh family for sharing their stories. (Oh, I make a small cameo appearance, drawn from a 30-minute interview with Health producer Dawn Heefner. Astute, intelligent questions all!)

PHILADELPHIA, PA.; September 22, 2009 (WPVI) — Attention deficit disorders are common among children. But few people know that they affect anywhere from 4 to 16% of American adults too – though most don’t know it. But identifying the disorder can be a big step in learning how to live a good life with AD/HD.

Karina Smirnoff moves across the dance floor in “Dancing With the Stars” with a precision that shows hours & hours of practice.

That’s not easy for someone with attention deficit disorder – ADD….

Continue reading at KPVI’s website, and PLEASE leave a note of appreciation there for this story.

newsboyOkay, the headlines this week may not come as news to us. But, following the recent ADHD Hall of Shame entry, science-based reportage comes as welcome relief. The following news sources, among others, report the latest study by NIDA Director Nora Volkow and colleagues showing that, well, ADHD is real. Read all about it.

Here’s a sampling of the breaking headlines, followed by the press release from the researcher:

  • BBC News: ADHD Brain Chemistry Clue Found
    US researchers have pinned down new differences in the brain chemistry of people with attention deficit hyperactivity disorder (ADHD). They found ADHD patients lack key proteins which allow them to experience a sense of reward and motivation. Read the rest of this entry »

Introducing: The ADHD Hall of Shame, a new ADHD Roller Coaster department.

Inaugural inductees: HBO show host Bill Maher and his guests Arianna Huffington, Rep. Jack Kingston (R-GA), and Rep. Darrell Issa (R-CA). Two liberals and two conservatives who could agree on one thing only: It’s okay to bash ADHD.

“Paddling a child is inhumane but drugging a child is the way to go?” began an indignant Kingston (R-GA), implying that there’s nothing about ADHD that a good whupping won’t cure. Read the rest of this entry »

New study on ADHD and adults
New study on ADHD and adults

To watch a short interview on NBC’s The Today Show with preeminent ADHD research scientist Dr. Russell Barkley, click on the link above. He introduces the studies examining long-term outcomes of children diagnosed with ADHD. For details on this groundbreaking research by Dr. Barkley and colleague Dr. Mariellen Fischer, read ADHD in Adults: What the Science Says. (Click on the title to learn more about it on Amazon.com.)

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High intelligence does not protect you from the effects of ADHD, a recent study indicates. Unfortunately, too many people mistakenly assume that high IQ rules out ADHD entirely.

Psychologist Thomas E. Brown, a prominent ADHD expert and assistant professor at the Yale School of Medicine, has previously conducted several studies to learn more about high IQ individuals with ADHD. The latest effort is now available from the online edition of the Journal of Attention Disorders (for a fee to non-subscribers) and will be published in the September print edition.

The scoop, according to the press release from the Yale University Office of Public Affairs: Read the rest of this entry »

book cover

While I was enjoying the tremendously fun crowds at CADDAC’s ADHD conference in Toronto, my book was whooping it up in New York City….winning four national awards!

Is It You, Me, or Adult A.D.D.? , by Gina Pera (that’s me), was twice-named a winner in both the Independent Book Publishers Association’s (IBPA) Benjamin Franklin Awards and ForeWord Magazine’s Book of the Year Awards.

IBPA Benjamin Franklin Awards:

  1. Silver for best psychology book
  2. Silver Bill Fisher Award for Best First book (non-fiction)

ForeWord Magazine Book of the Year Awards:

  1. Gold for best psychology book
  2. Silver for best book on family and relationship

What’s most exciting about these honors is the potential Read the rest of this entry »

“If there is one mental health disorder that has captured the attention of the American public over the last few decades, it is attention-deficit/hyperactivity disorder, or ADHD. Some people joke about it; others take it seriously. But one thing is certain: People know about ADHD, and increasingly educators, parents and adults are learning effective ways to manage the disorder. But this hasn’t always been the case.”

So begins an opinion piece in Roll Call, one of two newspapers written for and distributed to every U.S. Congressional office. The authors are two college students: Courtney Gifford, the reigning Miss Wyoming, and Blake Taylor, author of ADHD & Me: What I Learned from Lighting Fires at the Dinner Table.

The piece continues: Read the rest of this entry »

Is ADHD a modern “invention,” created by computers, fast food, or even…Big Pharma? Recorded history says no. In fact, a recently discovered medical text from 1798 describes, in some detail, disorders of attention, including the observation that some are likely hereditary.

Physician Alexander Crichton (pictured right, at his Cambridge University graduation) provided the first known medical description of disorders of attention in his three-volume medical textbook. Moreover, “he certainly deserves credit for being the first to describe adults with attention disorders,” says ADHD expert Russell Barkley, Ph.D., writing a commentary about Crichton’s work and its modern relevancies in the February issue of The ADHD Report, a newsletter that follows research and trends in the field of attention disorders.

Until the discovery of Crichton’s three-volume textbook (by the two Washington University researchers who wrote a paper introducing it), most medical historians acknowledged physician George Still as providing the first description of symptoms of what we today call ADHD, in children.

Specifically, in his lectures before the Royal Society of Medicine and later writing for the medical journal Lancet in 1902, Still Read the rest of this entry »

Tom was trapped: stuck on a 13-hour road trip with his wife — and his marriage on the rocks.

“Something’s wrong,” Liz started, and Tom’s heart sunk.

The Newmarket couple was heading from Ontario to visit family in New Brunswick. She wanted to have it out with him — then and there.

Tom knew, hurtling down the highway, there would be no escape. He had to face facts. Read the rest of this entry »

A physician with the World Anti-Doping Agency contends that ADD (as he calls it) is being overdiagnosed in major-league baseball. More importantly, it is over treated with medication. On what does he base this? The fact that he has rarely diagnosed the condition throughout his career.

Fail to see the logic? Me, too.

Just when I think this blog can move on to topics other than ADHD medical treatment, another flagrant show of ADHD ignorance makes the headlines. Being a big believer in speaking truth to misperception, I just can’t let it pass.

Besides, it’s pretty good timing. You know those physicians-in-denial-about-ADHD that Dr. Charles Parker wrote about last time? This physician serves as a good example. Read the rest of this entry »

This Thanksgiving finds me with much to be grateful for: friends, family, husband, health, and a book that is being generously received.

But this very day, my biggest, warmest THANKS goes to all those adults with ADHD who took the time to write their truth, so eloquently and movingly, in response to this recent New York Times column on ADHD.

Read the rest of this entry »

Lunch rush was over, but distractions remained numerous inside the La Bou cafe just off Highway 49 in Auburn. Blenders whirred out smoothies every few minutes, laughter erupted from a nearby group, a young worker noisily cleared tables.

Yet, through it all, Cass Brown Capel stayed focused – eyes locked on her interviewer, the need to interject random thoughts stifled, attention not straying to her daughter, Ariana, who was sitting placidly next to her.

You would have no inkling that Capel, a 54-year-old psychologist from Auburn, has been diagnosed with the adult version of attention deficit/hyperactivity disorder since 1991.
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So begins the main story on Adult ADHD, by reporter Sam McManis, in last Sunday’s Sacramento Bee. Immediately, readers learn that ADHD probably isn’t what they thought it was — a childhood ondition that makes someone fidgety or flighty.

Read the full story here: http://www.sacbee.com/749/story/1234819.html

Thanks to the Bee, McManis, and especially Cass and John Capel, for sharing their story in order to educate the public on this vastly underdiagnosed condition.

This article by reporter Sam McManis is short, but it goes straight to the heart of the matter. (I just discovered it is a sidebar to a much longer article — see next post.) I’m very grateful to read one of the rare articles on Adult ADHD and relationships that doesn’t deny, minimize, or otherwise sugarcoat the challenges of untreated or unacknowledged ADHD.

http://www.sacbee.com/273/story/1229847.htm

We need more articles like this. Because until Adult ADHD is better understood, people will continue to suffer needlessly. That would be a shame, because we have terrific solutions; we just need better awareness.

If you have a minute, please leave a comment on the article at the Sacramento Bee site, thanking Mr. McManis and the Sacramento Bee for this article. We can’t blame “the media” for poor coverage of Adult ADHD if we let good coverage like this go unacknowledged. (And unlike websites that pick up stories like this, violating copyright, this newspaper actually pays people to produce strong content.)

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Findings from the Most Comprehensive Survey on ADHD and Relationships