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SCT: A New Type of ADHD for Next DSM?

Before my friend Jack was diagnosed with ADHD, he used to call himself “Sluggo the Wonder Boy.”  Highly educated, hard-working, and his heart set on big achievements, Jack still had problems around being, well, sluggish.

For example, when he sat in a chair, within five minutes he invariably slumped and slid  until his head was on the back of the chair and his legs were stretched out, eyes half-closed unless something thoroughly grabbed his attention. It was a miracle of physics that he didn’t slide right onto the floor. If you didn’t know any better, you’d think he was chronically sleep deprived, but he slept well and regularly.

Only after ADHD was diagnosed and he began taking stimulant medication did he start sitting in a more erect and alert manner.  Moreover, his pupils became fully visible. Finally, I could see that his eyes were a lovely shade of brown. Who knew?

Does Jack have a different type of ADHD?  A sluggish type? I can’t say. But I can offer you this guest column from Robert F. Eme, Ph.D., on the possibility of a new type of ADHD that focuses on something called Sluggish Cognitive Tempo.

Dr. Eme is a clinical psychologist and professor of clinical psychology at Argosy University, Shaumburg campus. For the past ten years, he has taught future clinical psychologists about ADHD. (Note: When I was researching my book and seeking to identify psychology programs that included courses on Adult ADHD, I found one: his. For all I know, it still might be the only one. So, kudos Dr. Eme!)  He is also the co-author, with Patrick Hurley, of  ADHD and the Criminal Justice System: Spinning Out of Control.  Look for a future post here on his work in this area.

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by Robert Eme, Ph.D.

Robert Eme, Ph.D.

Something quite remarkable has occurred in one the proposed revisions to the diagnosis of ADHD for the Diagnostic and Statistical Manual-5 (DSM-5) — the creation of a new diagnosis for a new disorder: Attention-Deficit Disorder (ADD).

This disorder is characterized by an impairment in attention without hyperactivity or impulsivity. Most importantly however, this disorder is thought to be different from what is currently  known as the Primarily Inattentive Type of ADHD (ADHD-PI) in that the attentional impairment is different. In this essay, I will briefly summarize and update my review of this potential new disorder, which appeared in the 2007, Vol 1, issue 1 of the School Psychologist.

In 1993 Thomas Brown (see below for a case history from him) reported on a group of individuals who were not hyperactive but hypoactive and who demonstrated deficits in attention that were different from those typically found in ADHD. These individuals could be very bright and, in contrast to the whirling dervish “Dennis the Menace” stereotype of ADHD, better resembled the “space cadet” stereotype. It appeared that their deficits were related to the attentional dimensions of arousal and alertness with symptoms such as

  • “often stares into space”
  • “daydreamy “
  • “often appears to be low in energy, sluggish, drowsy.”

Moreover, in the field trials of symptom utility for DSM-IV, reported in 1994, two symptoms were identified that were more diagnostic of attention problems than all but one of the symptoms included in the official DSM list (i.e., “drowsy” and “daydreams”). Nevertheless, these symptoms never made it onto the list.

What this finding suggested, though it was not recognized at that time, was that there was a type of attention disorder that was different from ADHD. Subsequent research has validated this initial finding and provided evidence for a disorder that has been termed “Sluggish Cognitive Tempo” (SCT) that is different from ADHD-PI.

The three core symptoms of SCT are:

  • Slow
  • Sleepy
  • Daydreamer

Most importantly, the inattentive symptom of daydreaming (e.g., mind wanderer, spacey, zoned out, lost in thought, etc.) appears to be qualitatively different from the attentional impairment in ADHD-PI. In SCT, the distractibility is internal as the mind drifts from thought to thought rather than focusing on the task. In ADHD-PI, the distractibility is external in that there is a failure to inhibit or block out irrelevant external stimuli. The following vignette from my 2007 article illustrates this qualitative difference:

Mary (a young adult) described herself as being “more spacey than others.” She said that she has trouble paying attention when people talk to her in class. “I just feel like you are talking to me, but I don’t process the information. I look attentive and I feel attentive, but my mind is just kind of blank.

Mary explained that she also has problems during conversations with friends: “A lot of times I’m wondering what was just said. I don’t know if it’s like forgetfulness or it’s just not paying attention, but like things just don’t seem to settle in very well.

Margaret (a young adult) reported, “Sometimes no matter how hard I try to focus in class I can only focus for a few minutes at a time. By the time I realize I am not paying attention, I have no idea what is being discussed. When I talk to people, I zone out within 5 minutes and forget what they were saying. It’s like mid-sentence I blank out and am not able to continue my thoughts.”

In conclusion, only time will tell if indeed the DSM-5 (scheduled for release in 2013) contains this revision. Whether or not it does, however, there is no doubt that there are number of individuals who present with SCT type symptoms that are as impairing in academic settings as are classic cases of ADHD.

The following is a case history vignette from Thomas E. Brown, Ph.D. in The BrownLetter on ADD, a free quarterly newsletter of information and opinion about ADD/ADHD, in February, 2006. (You can read the entire newsletter here.)

Blaming the Victim:
Misguided Diagnosis for an Adult with ADHD

A 23-year-old woman recently came to me for a consultation after spending many hours and substantial income getting a neuropsychological evaluation for suspected ADHD at a major medical center in another state.

She is very bright and had no history of behavior problems or substance abuse, but she had struggled intensely with attentional and working memory problems that resulted in severe academic underachievement from 9th grade onward. She obtained a GED after she failed to meet high school graduation requirements. She then struggled for 5 years to complete a two-year degree in a community college. Meanwhile, she performed well in her job and excelled as an athlete and musician, though she often suffered from excessive perfectionism and depressed mood.

The evaluating clinician reported that although this woman reported many symptoms of ADHD during adolescence and adulthood, he could not make the diagnosis because she did not fully meet DSM-IV criteria. He refused to diagnose ADHD because the patient’s mother, when asked about ADHD symptoms during the patient’s childhood, did not recall noticing the requisite number of symptoms. Instead, he diagnosed the patient as suffering from “Self-Defeating Personality Disorder.”

This is an example of a clinician rigidly applying DSM-IV criteria for diagnosis of ADHD in a way that prevented desperately needed treatment. Adding insult to injury, by giving the patient a diagnosis of “Self-defeating Personality Disorder,” the clinician clearly implied that the she was the source and cause of her problems. In short, he was blaming the victim for her persistent suffering. I consider this not only a clinical error, but an unfortunate prejudice about ADD that is altogether too common, even among some skilled professionals.

Why Some Bright Students Fail At Yale University

Dr. Donald Quinlan and I recently completed analysis of data from 74 students aged 7 to 18 years with IQ scores above 120, in the top 9% of the population, who had been referred for chronic underachievement. Most had no behavioral problems and were not hyperactive, but did have attentional disorders. Despite excellent long-term memory and strong verbal and perceptual abilities, these very bright students showed significant weakness on standardized tests of working memory and ability to focus attention. They were unable to recall accurately what they had heard or read just a few minutes earlier. Many also showed slowed processing speed that impaired output for writing tasks.

These high IQ students reported significant difficulties in organizing and getting started on their work. They often found it necessary to re-read passages multiple times in order to comprehend the assignment. Many did well on quizzes and tests, but received low or failing grades due to inattention and persistent failure to complete homework. Parents and teachers were frustrated because these students appeared unmotivated to do assigned work. Yet everyone in the study had a favorite activity, such as computer games, tennis, drawing or playing guitar for which they regularly focused very well. Students claimed that they could focus easily on those tasks that especially interested them, though they were chronically unable to mobilize adequate attention or effort for their academic work.

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  1. Matt Bush’s avatar

    Dr. Barkley covered SCT quite well in his UCtelevision lecture “Management of ADHD”. I remember showing my mother that lecture and her (a high school teacher) being totally appalled at the name. If I remember correctly, Barkley suggested that SCT might be more effectively managed with norepinephrine reuptake inhibitor drugs like Strattera, but its probably all just theoretical at the moment.

    I think it’s great that the science is finally able to zone in on what is and isn’t ADHD. By doing so, it can only help everybody. If SCT is a seperate condition, that’s great – it can be more accurately studied and managed!

    But, wtf is “self-defeating personality disorder”? Sounds more like psychiatrist-fail disorder to me.

    Reply

    1. Gina Pera’s avatar

      HI Matt — Thanks for visiting. Isn’t that Barkley lecture wonderful? I agree with your mother, though: it’s a horrible name — right up there with Attention DEFICIT DISORDER.

      These folks really need to invite a marketing person, or maybe a poet, to the table. (Not too much marketing, though; that can go in very bad directions. lol!)

      I must say, though, that “Jack” in the lead-in is my husband, and that was his word for himself: Sluggo.

      When we used to bat around potential titles for my book, one of his suggestions was: “I Married ADHD: The Mollusk Years.” ;-)

      And I agree with you on “self-defeating personality disorder.” Maybe you read in my book where I cite Dr. John Ratey’s early study showing that a huge percentage of patients designated “treatment failures” actually had ADHD. The term is ambiguous, but I’m thinking the people who didn’t “respond” to treatment felt like the failures.

  2. alane’s avatar

    This was excellent information to help us Adders understand how our mind internalizes information and how our brain functions.

    Reply

    1. Gina Pera’s avatar

      HI Alane,
      I’m glad you found it helpful. Yes, exactly. The more information, the more validation, the more explanation…..the less confusion and isolation.

  3. JenniferM’s avatar

    Thank you for this! I thought I was losing my mind a little. I am married to a man who 100% fits the Sluggo definition! He thankfully has been diagnosed with ADHD and is doing miraculously well on medication. He meets the Inattentive and Impulsive criteria too but when he is not on his medication he can sleep any where, any time, no matter how much sleep he had the night before. So much for the hyperactive part and this is the first thing I’ve read about anyone with ADD being sluggish or tired.

    Our bigger struggle is getting his 15-year old daughter diagnosed. She is the same Sluggo way; and day-dreamy and space-cadetish; and can’t carry on a lengthy (5 minutes or more) conversation to save her soul BUT she has a 3.75 GPA, cheers for her school, is very popular and social. No disciplinary issues at all and she doesn’t really show signs of struggling academically, though that started to change just slightly last year when she entered high school. School has just started this year so we’ll see.

    She does however, pull her hair out obsessively when she is anxious or stressed – eyelashes, eyebrows, specific areas on her head, etc. and that is heartbreaking to see. She is a beautiful girl and she has so much potential – if we can just break down those glass walls!

    Long story but we don’t have custody (yet) and can’t get her diagnosed. She has very big dreams for her life and I worry constantly she is not going to be able to realize those dreams if we don’t get her help soon. Thank you for posting this. It helps (me at least) justify some of the traits that don’t fit in with the classic diagnosed behaviors.

    Reply

    1. Gina Pera’s avatar

      Hi Jennifer,

      I’m glad that girl has you and her dad in her life. I hope that she can soon benefit from an evaluation and possible treatment.

      I cannot understand anyone witnessing that heartbreak and not getting help for her. Obviously, there is some “denial” in the parent and perhaps a potential diagnosis as well.

      In the meantime, the fact that you and her father understand her challenges and want to help is sure to be a help in itself.

  4. Dr Charles Parker’s avatar

    Interesting post, g, on yet another challenging angle – created by looking at ADHD from the outside.

    My only regret upon reviewing this interesting material is that many are still standing back, en masse, trying to describe nuances from the outside rather than using the patient’s own mind perceptions as a guide for treatment.

    So many ADHD folk I see have struggled with this cognitive slowing as a downstream result of unmanageable cognitive abundance, not, as implied by the ‘sluggish’ word, a cognitive deficit. Too much looks on the outside like too little.

    I cover this point rather emphatically in my own recent book as such ‘appearance’ terms such as ‘sluggish’ or ‘slow’ represent only an outsider’s view of the more prevalent overactive PFC ['Thinking ADHD']- and become disdainful misrepresentations of the cognitive struggle with ADHD.
    cp
    Author: ADHD Medication Rules – Paying Attention To The Meds For Paying Attention.

    Reply

    1. Gina Pera’s avatar

      Yes, Dr. Parker. We need to bring more disciplines to the table, don’t we. The people who observe, the people who can measure, etc. It’s all important.

      If you’ll send me that excerpt of your book, I’ll be happy to post it on this blog.

  5. Gary’s avatar

    Ha! I knew it. I was diagnosed a couple years ago after my separation, anyway, before I make a short story long for which I have been accused, I used to say I had ADHD without the H. Been told just recently at a job performance review, oh I can’t remember exactly, but the jist of it was that I appeared “slow” in movement and interest not in intelligence.

    Anywho, When people complain about how slow I walk my response over the years became “Why would I want to rush, life is short, I want to smell the roses.”

    Slumping in chairs or stretching out at any chance I can – definitely – sleeping any where absolutely. It was kind of interesting to note too when my nephew and i went to an ADD Centre where they use computerized EEG feedback of brain wave activity and got to try it out for free. My sister was watching the computer screen of the most active brain wave states. No surprise that most of my nephews activity was in the theta range. But my sister burst out laughing when I did it because the majority of my activity was in the Alpha state. Her comment being; “no wonder you always look half asleep, you are.”

    Just found that was interesting.

    Reply

  6. Gary’s avatar

    Oh yeah, had to go back and glance over the article but I also wanted to comment on reading, or the reading of questions in school which basically rang to true for me. I love to read but as the ex-wife has said or commented, “How come it takes you so long to read a book?”

    Didn’t want to admit it at the time that I had to go back and re-read what I had just read about ten times. But then at the time I thought that was “normal” for everyone. How ever when I am very much into a book I don’t have that problem quite as often. In answer to my ex’s question I said something to the effect of, “It’s because I can vividly imagine/picture what I am reading.” Which of course she responded that she does to.

    But I personally don’t feel that to be accurate I think I can “see” it much more clearly than she could. Many times I would, for lack of better description, lose visual sight of the words and the visual image in my head would be like watching a movie in a theater, only more acutely, or even more clearly as a real life experience, but not quite. I was still reading the words ’cause I would go back and check to see if I miss read something but nope I had read it all.

    Any-who I’ll stop yacking now cause writing this “little bit” has taken me about 30 mins, what with organizing thoughts, re-reading what I read so it makes at least some sense, and correcting errors. Essays were always somewhat torturous.

    Ok – thats it! ;)

    gary

    Reply

  7. Gary’s avatar

    Oh and did I forget to mention day dreams that I have had while walking down the street that would stop me in my tracks till I realized I was letting my mind run away with the dream.

    Reply

  8. ADHD Genius’s avatar

    Makes me wonder if ADHD & Narcolepsy are merely different forms of the same basic condition, since SID fits inbetween.

    I find that with my ADHD, periods of hyperactivity are followed by periods of sluggishness & I’ve also thought the sluggishness was the body’s way of catching itself up on rest and renewal after a long period of high intensity hyperactive energy & activity.

    Reply

  9. silvana’s avatar

    My 20 year old daughter fits the SCT description perfectly to the excessive perfection and depression. She goes to college in Boston and she will head back to school next week. We need to have her diagnosed and treated and we would like feedback as to any research being conducte on SCT. She studies at Tufts and although she is a very bright kid she is underachieving academically because of major procrastination. She sleeps and overates and shows signs of depression. Could you guide us with a list of doctors in the Boston area that are specialist in this conditon? please let me know if testing should be done by a neurologist or a pschychiatrist? we need guidance and fast since we cant afford to waste another semester with low GPAs!!!

    Reply

    1. Gina Pera’s avatar

      Hi Silvana,

      You don’t need to wait for research on SCT to get help for your daughter. It sounds like you need a thorough evaluation; she might have ADHD as well as depression or anxiety. It’s often not one or the other but both.

      Massachusetts General Hospital is considered a national center for ADHD research. I suggest that you contact the hospital for referrals to clinicians in the area:
      http://www.massgeneral.org/children/adolescenthealth/articles/aa_add.aspx

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