Know some geeks who can’t sleep? Please share this post with them. It might help.
Our monthly Adult ADHD Salon in Palo Alto ran late Wednesday night, as usual. (Call me a nerd, but this group is the social highlight of my month; we have fascinating conversations and it’s always great to cheer progress reports.) So, I was a little fuzzy-headed the next morning when I read this story in our local paper: “The Quantified Self: Taking quantum leap in self-examination.”
It caught my attention, because one immense challenge with ADHD is self-monitoring. This can be a real liability when you are trying to figure out how you landed in certain circumstances, how you come across to others, or even what you ate for breakfast and if you’re following through on a routine you’ve set for yourself.
Leave it to Silicon Valley’s geeks then (including the ones who might have ADHD but don’t know it) to come up with an entire self-monitoring movement where, as the story explains:
Individuals measure the minutia of moods, weight, pain, muscle mass, even their innermost thoughts, in an effort to know themselves better and improve their lives.
All this sounds great; we can’t hit targets without first identifying them. But without bringing neurophysiological information to bear, this amassed minutiae might have its limits. After all, being software-savvy does not translate to being neuroscience-savvy.
Bo Adler is a leader in this geek elite “Quantified Self “movement. The story begins by relating how conventional medicine has offered no good treatment for his long-standing sleep problems:
So when young computer scientist goes to bed each night, he conducts his own one-man research study, determined to find secrets to restful slumber.…
Interpreting the data from his Sunnyvale apartment, the Cal Tech-educated Adler seeks to identify lifestyle factors — Pepsi? Worry? A girlfriend’s visit? — that might correlate with restlessnss.
“Doctors just follow the recipe books. That is not helpful,” he said. “Everybody is different. Maybe there are things that are specific about me.”
Sleep is a complex subject, especially in this Age of Distraction. And Adler sets an example for us all by playing a pro-active role in monitoring and managing his own health. A good physician requires data.
But what if your sleep challenges aren’t specific to you but instead are specific to a large subset of people with ADHD? (I wrote about this topic in this blog post, To Sleep, Perchance to Turn Off That *&$@#” Computer,” which drew many validating comments.)
I agree with Adler that “conventional doctors” aren’t always so helpful in such matters, especially if they have no clue about the connection between ADHD and sleep challenges – and even some alleged ADHD experts remain clueless. The typical “sleep hygiene” tips just don’t always work with untreated ADHD. (Don’t get me started about the Stanford Sleep Clinic’s seemingly willful denial of this connection.)
(Note: Please be sure to read Adler’s comment below for clarification; and you can read his “Suggestions for Sleep Apnea Self-Experiment”)
But will sleeping with electrodes affixed to one’s head and analyzing the resulting database provide all the necessary answers? When it comes to possible ADHD, not if more contributory factors, such as neurotransmitters, aren’t considered.
I welcome your opinion. Please scroll down to leave a comment; no registration required!
Tags: AD/HD, Adult ADHD Salon, Bo Adler, Palo Alto, Quantified Self, sleep
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This business of software-based self-monitoring strikes me as yet another exercise in cool software engineering. Even so, I suppose it might help some ADDers discover how out of wack their life is, given the poor level of self-awareness they frequently show. Yes, it is overkill as compared to just keeping a notebook and noting everything down, but hey, that’s way too much to ask of your typical geeky ADDer. So, on balance I guess this kind of data is better than none, though I foresee that whatever conclusions emerge will ultimately be ignored in favor of the latest toy
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You’re right — sleep is a very complex subject, and (despite the name) the process for how to conduct an investigation is more a rough guideline than a precise science. Due to the nature of newspapers, much of the details are left out or glossed over. In my particular case, I have had really bad congestion my whole life that allergy medicines don’t help and it’s clearly impacting my sleep. For sure it’s not the only problem I have, but it seems like the most prominent one, and that’s one thing I’m trying to track.
Generalizing, I think that the QS movement arises from the fact that we know ourselves best. Armed with increasingly sophisticated technology, we can take a conversational hypothesis (“my congestion is the primary factor in my sleep problem”) and actually test it in a pseudo-science kind of way. This is really “citizen science” (like amateur astronomy) taken to the next level, trying to develop techniques and tools that anyone could use.
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Good points, and that’s part of what got me started with this tracking. I was on a CPAP, but I didn’t feel like it was helping, and I wanted to try to measure the effect. (It turns out that it does help, but I was ripping off the mask after 2 hours, so I couldn’t feel any improvement.)
On food allergies: a friend had me go on an all rice diet for five days, with no improvement. Perhaps I should have done it longer? The only thing I discovered is that when I eat the combination of a burger, fries, and pepsi, my nose starts running for about 30min.
On not finding the unknown: true. That’s where sites like CureTogether come in, because you can look up your symptoms and discover what other people have tried. And thanks for bringing up the neurotransmitter angle; I will try to look into it and see if that could possibly be a factor. Even better would be for you to propose an experiment that people could do at home to try to measure an effect from neurotransmitters!
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Mrs. Pera — Regarding self-monitoring: Are you familiar with Seth Roberts? He has made a career of monitoring himself and performing experiments to see the effect of various foods, sleep and other activities had on his body, moods and so forth. He has written papers and spoken about the idea of self-experimentation, with careful monitoring, to come up with new ideas.
I don’t know you at all so I hesitate to call you “Gena”, but I have just started “Is It You, Me or Adult ADD”, so I feel that I do know you in an important way. Thanks for the book and thanks for this blog.
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Hello,
From both personal (lifelong) experience & recent research findings, I’m convinced that ADHD is strongly associated with circadian rhythm problem(s), esp. DSPS (Delayed Sleep Phase Syndrome) , which seems to be very common among ADD’ers (myself included). In the 1st of 3 links below, 31 of 40 adult adhd patients had “SOI” (sleep onset insomnia) characteristic of DSPS.
http://www.ncbi.nlm.nih.gov/pubmed/20163790
http://www.ncbi.nlm.nih.gov/pubmed/17948273
http://www.ncbi.nlm.nih.gov/pubmed/19110891
Regards,
James
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