764834_low CROP

About Author Gina Pera

My foray into the field of ADHD began by chance.  In 1999, I picked up a library book about the brain. And what I read changed my life, my husband’s life, and eventually many other lives. Funny enough, that book was Dr. Daniel  Amen’s Change Your Brain, Change Your Life.

In that book, I read about something called Adult ADHD, and suddenly I had a clue why, as much as we loved each other, my then-fiancee and I were driving each other nuts!  I showed the book to him, a neurogeneticist who as luck would have it could vouch for the authenticity of the material. “Doesn’t this sound like you as a kid?” I asked him. ” And, well, doesn’t it sound like you now?”  He agreed.

In fact, he further opined that “something was up” with me, too, and I could not disagree; I was reacting to the inexplicable by trying to manage the unmanageable, getting more frustrated by the day. So off we went to navigate our mental healthcare maze. I quickly learned that if we left this up to the psychiatrist, we might never see the progress we hoped for. Surely  other “partners of” were in the same boat, I imagined, so I started an online discussion group. (That group is almost 800 members strong now, with membership throughout the English-speaking world.)

Our wedding day, in the "lucky" rain

It’s not enough to say that I was stunned at the widespread ignorance about ADHD, including among professionals. Frankly, I was outraged. There is quite enough suffering in the world that cannot be prevented. The suffering that comes from unrecognized ADHD is not one of them. We have a strong knowledge base about ADHD. We have good treatment strategies. All we lack is more people willing to step into the 21st Century and apply what we know.

Deciding to put to use my background as a print journalist, I became a persevering advocate for better awareness and evidence-based treatment standards—by lecturing, writing, and leading discussion groups in Silicon Valley and the international Internet-based group for the partners of adults with ADHD.  Oh, and yes, you’ve probably seen my comments around the Internet. When you are an unpaid advocate for 10 years, you go to war with the army you have: your keyboard and a clear command of the facts. (No, I’m not a “pharma shill.”  While I do support anyone’s  right to take medication without stigma, I have never sought or received funded by pharmaceutical companies. You won’t see ads on my blogs, either, I’d have no control over the products place but their presence would imply my endorsement.)

After a few years, the need became clear for a nuts-and-bolts guide to Adult ADHD, especially as it affects relationships. A guide not only to understanding Adult ADHD symptoms but also the “emotional baggage” that comes with late-diagnosis—baggage carried by both partners in the relationship. I also wanted to empower readers with a consumers guide to Adult ADHD treatment strategies, including:

  • the particulars of therapy to seek (and avoid)
  • the medication protocol that so few prescribing physicians seemed to know about (and perhaps that’s why so many people had unnecessary side effects and gave up on treatment altogether), and
  • that big deal breaker: how to get through a loved one’s “denial” (a topic not covered in any existing consumer book on ADHD before my book came out).

That’s why I wrote Is It You, Me, or Adult A.D.D? Stopping the Roller Coaster When Someone You Love Has Attention Deficit Disorder (2008, 1201 Alarm Press, San Francisco).

I am grateful to the many top experts who granted interviews, fact-checked chapters, and endorsed the book. It has won four national book awards and, last I checked, has 100 five-star reviews on Amazon. It’s a book I am thrilled to be able to hand to people who are struggling. (Because, after all, I couldn’t keep typing the same advice in our support group for another 10 years!)

You can purchase the book at:

At my Bay Area talks, I often bring one of my antique roller coasters. Because learning about ADHD doesn't have to be dully serious.

  • the book’s website, where it comes with free shipping and free PDF of the book — uploadable to some electronic readers and useful for printing out pertinent pages for a loved one, clinician, etc.
  • Amazon.com, and Barnes & Noble.com
  • Barnes & Noble stores. To locate a store near you, click here.

The book comes in several formats:

  1. paperback
  2. PDF
  3. audio (CDs and downloadable Mp3 files)
  4. Kindle
  5. Nook

The book and my unpaid advocacy have been a giant labor of love for more than a decade now, and it is my greatest life’s joy to have connected with so many thousands of people and played a small role in elevating their lives.

This blog will contain a few book excerpts, which I hope will be augmented by readers’ comments.  I will also share guest essays and updates on ADHD research and news in the popular press. So, please use this blog to share with the public your experiences and support. They just could change someone’s life.

You can learn more about my journalistic credentials, awards, portfolio, presentation videos, etc. at my personal website: http://www.GinaPera.com

Thank you for your interest in Adult ADHD, and please try to keep an open mind if you are just beginning to learn about it. One fact is clear: ADHD is real, and it affects real people’s lives. Maybe even your own or that of someone you love.

Best wishes,

Gina Pera
Email Gina Pera

  1. Donna Stanley’s avatar

    Hi Gina , as spouse and parent of ADHD son/husband I cannot put into words how important your book has become to me since I ordered it from Amazon I was desperate for some information/help/empathy for partners.
    Here in Ireland the ignorance is worse than what you would find in USA
    I am determined to find some funding to purchase as many copies of your book as I can and ‘spread the word’,I cannot be sure but in a country of over 1 million people, I would bet I am the only one who has a copy of this book and my mission is to change this for all the other people in the same situation and dont even know it.
    Thank you for putting it together and I thank God I found it.
    Regards
    Donna

    Reply

    1. Gina Pera’s avatar

      Bless your heart, Donna, and thank you for writing. It means to much to me to know that you’ve found the book helpful. It’s been a rather mammoth undertaking, but to learn from people like you that I’ve achieved my goal –bringing others out of isolation and doing my bit to end the suffering that comes with ignorance — well, it’s hard to ask for more. THANK YOU.

      When I spoke at the ADDISS ADHD conference in London last year, I met a few people from Ireland. Perhaps ADDISS could put you in touch with some local advocates. It seems that, as it was in the U.S. until a few years ago, the emphasis remains on children and not adults.

      take care,
      Gina

      I haven’t checked with Andrea Bilbow (director of ADDISS) to see if they will hold another conference next year. If they do, it’s a marvelous opportunity to learn and to gain support from others who “get it.”

  2. steve’s avatar

    Gina,
    I’m on meds for my Adhd.
    My problem is that I give up on therapy when I’m not in crisis.
    I don’t know what to talk about when it’s not imminent danger Etc.
    Have you any experience with hypnotherapy?
    Any other suggestions?
    Thanks as always.
    Steve

    Reply

    1. Gina Pera’s avatar

      Hi Steve,

      Well, anyone who hears me talk on these topics knows that I’m likely to ask, “what meds, how did you select them, and how long throughout the day are they in effect?” Because so many times the medication isn’t what it should be.

      I would also ask what kind of therapy? Is it ADHD-focused therapy that helps you to develop new habits of planning, so that you don’t want for crisis to get you dealing with certain things? The best ADHD therapists employ practical skill-coaching, too.

      But to your question, yes, I think hypnotherapy is often a great idea. But it depends on what you’re needing it to accomplish. It’s not going to help you with practical skills (organizing one’s time, priorities, or stuff). But it can help with getting better sleep, avoiding substances such as cigarettes and caffeine, and calming the mind so you stay more mindful.

      I hope this helps,
      g

  3. Heidi’s avatar

    Hi Gina,

    I have only been researching this for a day and a half now and already reading your articles, comments, and joining the yahoo support group has given me some peace of mind that “I am not crazy” and my partner does love me!

    My partner and I have been together for 2 1/2 years. She was diagnosed with AD/HD as a child and has never received any support or medical attention. Her mom went the natural route with keeping her daughter active and exhausted to curb her symptoms. But as an adult that was left to her to do and she struggled with it!

    One way she self medicated was by doing just that….self medicating. She became addicted to pain pills and abused them for 15+ years. She is 2 years clean now, but once off the treatment she is on I/we worry how the AD/HD might manifest into the addictive feelings she feels that makes her feel like using.

    Can you speak on what you know about AD/HD and addicts….addictive personalities.

    Thank you, Heidi

    Reply

    1. Gina Pera’s avatar

      Hi Heidi,

      I’m glad you found my blogs. You will probably find my book equally helpful — if not moreso. I wrote it as a comprehensive guide to understanding Adult ADHD, including its impact on relationships, and knowing about its evidence-based strategies.

      As for your partner’s mom, yes, the “natural” route often ends in the scenario you describe: with unhealthy self-medicating. The sources of substance-abuse are many, and include sexual activity, alcohol, marijuana, pain killers, food, gambling, driving fast/recklessly, etc.

      I wouldn’t call it an “addictive personality,” however. I would call it untreated ADHD. My book will help you understand the role played by dopamine in the brain’s reward systems and how ADHD neurobiology can hijack that reward system.

      tx
      g

  4. Joell’s avatar

    I think my husband has ADD/ADHD and after reading your book, I am almost positive! I have been trying to search for help in the Reno, Nevada area, but cannot seem to find anyone or get any recommendations. My husband is very successful and does not think he needs any help because people with ADD/ADHD aren’t as successful as he is, so he cannot not have it. I need to find some kind of help in my area and I am getting desperate! Any advice you can give me would be appreciated.
    Thank you so much for writing the book, I don’t feel alone anymore and that means everything to me right now.
    Thank you,
    JJ

    Reply

    1. Gina Pera’s avatar

      Hi Joell,

      I’m so glad my book has helped you not be alone. That does count for a lot, I realize, as there wasn’t such a book for me 12 years ago. :-)

      I can suggest two options for you.

      1. I offer limited telephone consultations. Sometimes just an hour or two of talking with someone who truly understands can be a big thing!
      2. I moderate an online discussion group (not a “chat” group but e-mail based). Here is the link:

      http://health.groups.yahoo.com/group/ADHD_Partner/

      best,
      Gina

  5. Amanda’s avatar

    Gina-
    I stumbled upon a comment of yours on another site that referenced rates of prevalence around military bases…wondering if you can suggest any research that’s out there? It’s exactly the data I am looking for- I’m a Navy Mental Health NP student working on my final paper and havent seen much on pubmed, etc. with regard to ADHD numbers in the military. Any help is much appreciated!
    -Amanda

    Reply

    1. Gina Pera’s avatar

      Hi Amanda,

      Thanks for writing.

      You know, I think hard and fast figures will be hard to come by. I’ve seen no definitive studies on overall rates of ADHD in the military.

      At a few ADHD conferences, I’ve made a point to identify military representatives and ask them about the situation. What I’ve learned is that the level of awareness about and treatment for Adult ADHD is highly dependent not only upon the branch of the military (the Air Force seems to be the most “enlightened” when it comes to treatment, but that’s just my impression) but also upon the specific base. Treatment availability can vary widely base to base.

      Further complicating the picture: I’ve learned from moderating the online group for partners of adults with ADHD that many serving in the military are afraid to ask for an evaluation or treatment; because it will mean dismissal. So, whatever “official” number is out there, you can bet the “unofficial” number is higher.

      It seems the best way to get a handle on the prevalence is by looking at specific studies and extrapolating. Often the first part of published papers details the existing background knowledge on the subject, and so these papers might even include the numbers you’re looking for.

      Here are two such studies:

      http://www.ncbi.nlm.nih.gov/pubmed/21209294
      http://www.ncbi.nlm.nih.gov/pubmed/22305866

      I suggest that you keep looking through PudMed and also write to the researchers asking if they can help with specific questions you have. There is usually an e-mail for the lead researcher just below the title information. Most researchers try to be helpful, and since this is their topic area they have no doubt larger knowledge of the demographics.

      I wish you all the best with your research; it is much needed!

      Gina

Reply

Your email address will not be published. Required fields are marked *

*

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>